According to the National Institutes of Health, there are approximately 7,000 rare diseases affecting between 25 and 30 million Americans. This equates to 1 in 10 Americans. We’ll learn about research in Maine that addresses rare diseases, as well as where patients and family members can turn for help navigating available resources and treatment.
Brian Denger, parent of a child with a rare disease
Thomas Reynolds, pediatric neurologist located in Scarborough; affiliated with Maine Medical Center
Cathleen ‘Cat’ Lutz, Vice President, Rare Disease Translation Center, The Jackson Laboratory